Photo and design Pamela Lindgren 2013 ©.
1973, summer
My older brother dies after a very short illness. 14.5 years old.
He was diagnosed with dilated cardiomyopathy, that is greatly enlarged and extremely bad heart.
1992, autumn
I am admitted to hospital for investigation of my heart. I get diagnosed with dilated cardiomyopathy.
A period of medication is started. My doctor tells me that he has worked with transplant patients. Well, I say, what does that have to do with me?
It is a very good alternative, he says.
The alternative is actually dying. The choice is simple.
Years pass and the number of medicines is increasing. Samples taken more often. More hospital visits.
Life with cardioversion begins.
A heart with atrial fibrillation (AF) requires "jump starting" into the right rhythm.
Diuretic pills make the toilet visits impossible to count already at 7 am.
I adapt myself to a different schedule.
I don’t have the strength to walk fast or far, not even to stand up.
To sit down during cooking, tooth brushing or even sleep feels so much better.
2000, March
I faint for the first time. The nice day I planned ends with me in hospital, undergoing ablation therapy.
2000, April
A defibrillator is implanted.
Faint - bam! Faint - bam! Everything goes. I’m getting used to it.
2002, summer
Now nothing is fun.
Diuretic medications are not working, my steps get heavier. I don’t want it, I don’t have the strength!
I’m in the hospital again, investigated for a transplant. Thursday-I’m on the waiting list.
Friday- my new heart has arrived.
Saturday- my new life begins !
-Mona
